In addition, as outcomes of the scoping review the themes identified what knowledge, skills, tools, guides, models and resources existed and could be used or adapted by patients/families, providers or leaders for initiating and developing patient and family engagement.

This literature will inform the Resource Kit proposed to provide patients, providers and leaders with the information and tools to make patient engagement meaningful and successful. The second part of the book goes on to examine what this might look like in practice, under the heading of “Seven Habits for Highly Effective Family Ministry”. The author is keen ‘to get away from the silo mentality of seeing family ministry as an isolated speciality’. An overview of patient engagement evaluation frameworks or algorithms used, evaluation of specific methods, and pilot testing templates for use in community health partnerships were not part of this scoping literature review. It is essential for those who want to understand context and where to start in family ministry as well as those who are already on the journey.

This book seeks to shape the approach of churches of all sorts towards families of all sorts, and Gail Adcock draws on wide experience as the Family Ministries Development Officer of the Methodist Church.

Corporate Consultation Secretariat, Health Policy and Communications Branch: The Health Policy Toolkit for Public Involvement in Decision Making. Patient engagement was generally considered beneficial to the health care system in its policy and planning activities, but barriers were also identified. There was a desire to ensure patients and their families provided their perspectives to help design and improve health services; however this was not easy [ 31].Hands-on experience could be a powerful way to change attitudes as this opens people’s eyes to the real potential involvement but formal training and education is also crucial [ 35], p.

Communication - Language, in terms of health literacy and especially with the use of technical terms, was a barrier to patient involvement. Finding the right patient or consumer without an ‘axe to grind’ and who could represent the ordinary patient was the goal [ 32]. Fourteen other terms were identified and defined by 26 different sources on the concepts of patient engagement including Citizen Engagement; Consumer Engagement; Involvement; Meaningful Patient Involvement; Participation; Patient and Public Engagement; Patient and Public Involvement (PPI); Patient-Centred Care; and Patient Involvement. Patient engagement is not easy and was in fact quite complex- the literature identified it as being very challenging as it presented with many potential barriers to anticipate or consider in addition to the benefits.In 2009 AHS established the Patient Engagement Department to help advance patient engagement throughout the organization. This review included both published and grey literature, and analyzed both in the context of their contributions towards patient engagement in the broadest sense, considering tools, guides, barriers or benefits, and other attributes. One adaptation of the IAP2 model was found in Health Canada’s Policy Toolkit for Public Involvement in Decision Making using communication (inform or educate), listening (gather information), consulting (discuss), engaging and partnering [ 14].

MB was also involved with original discussions on layout of manuscript and with editing and revisions. Seven themes were identified from this content analysis ( Definition of Patient Engagement, Stakeholder Roles and Expectations, Meaningful and Appropriate Engagement, Models of Engagement, Benefits and Barriers to Patient Engagement, Evaluation of Patient Engagement and Engagement Resourcing), each summarized into tables (some of which are provided as examples in this paper) which would help inform the key content sections for the proposed Patient Engagement Resource Kit. She has a primary education background, was family pastor at Stopsley Baptist Church for ten years and completed an MA in Children and Family Ministry in 2013.When evaluating the impact of public involvement policies, Wait and Nolte [ 55], suggested that it “remains difficult to evaluate, partly due to many policies [being] short lived or very recent. Considered a challenge to effective service user engagement, McEvoy [ 43] suggested that adequately resourcing patient engagement enables patients and families (service users) the opportunity to contribute through engagement programs, which if not resourced properly might become tokenistic exercises. Articles/items within each theme were clustered under main topic areas of ‘tools’, ‘education’ and ‘infrastructure’. The book has a definite context, having been written during the tight lockdown of early2020, which makes it even more relevant. Professional - Despite progress towards acceptance of a more important role for patients, attitudes of health professionals remained a strong barrier [ 29, 49].